2026-10-07T20:38:45Z https://api.figshare.com/v2/oai

oai:figshare.com:article/34023282 2026-09-30T00:56:18Z category_30418 portal_12 item_type_5 month_year_09_2026

Rae Padd: Informational Support for Paediatric Home Tube Feeding: Differential Perspectives from Caregivers and Clinicians Rae Padd Zhang (25136702) Sarah Leadley (1217430) Anna Miles (1182846) Other psychology not elsewhere classified Enteral feeding Home tube feeding Paediatrics Parents Patient education Qualitative research Parent support Online information <p dir="ltr">Parents of children requiring home tube feeding often report insufficient informational support, while clinicians face challenges providing consistent guidance. This study explored the mechanisms shaping informational support for paediatric home tube feeding in Aotearoa New Zealand from both caregiver and clinician perspectives. Four caregiver focus groups (n = 14) and two clinician focus groups (n = 10) were conducted and analysed using critical realism and Template Analysis. Findings were first analysed separately and then synthesised. Five interrelated factors influenced informational support: timing, caregiver factors, clinician factors, family-clinician relationships, and systemic constraints. Caregivers described limited and inconsistent information provision, prompting independent information seeking and substantial emotional labour. Clinicians expressed concerns about online misinformation but were often unaware of existing evidence-based resources and reported barriers related to fragmented care, communication, and resource availability. The synthesis suggests that strengthening clinician awareness of credible resources and routinely revisiting caregivers' evolving informational needs may improve informational support and reduce reliance on potentially unreliable information.</p> 2026-09-30T00:56:18Z Image Poster 10.17608/k6.auckland.34023282.v2 https://figshare.com/articles/poster/Informational_Support_for_Paediatric_Home_Tube_Feeding_Differential_Perspectives_from_Caregivers_and_Clinicians/34023282 CC BY 4.0