2026-10-13T18:31:39Z https://api.figshare.com/v2/oai

oai:figshare.com:article/34022895 2026-09-29T10:41:46Z category_7 category_45 category_734 category_106 portal_87 item_type_3 month_year_09_2026

Priorities and design principles for a mobile health (mHealth) application to support self-management of post-stroke aphasia: experience gathering and prioritisation within an experience-based co-design approach Sarah J. Wallace (10769275) Megan Isaacs (13968767) Gopal Sinh (25136634) Archana Sinh (25136637) David A. Copland (8274156) Victoria J. Palmer (11450362) Janet Wiles (142032) Anthony J. Angwin (4006565) Annie J. Hill (11573299) Barbra H. B. Timmer (9387385) Kirstine Shrubsole (4803246) Jessica H. Campbell (25136640) Kyla Hudson (20331051) Matthew Gullo (15200176) Peter Worthy (8549010) Medicine Sociology Biological Sciences not elsewhere classified Science Policy Aphasia stroke self-management experience-based co-design human-centred design mHealth <p>(1) To map experiences of accessing and adhering to community-based aphasia therapy and establish priorities for improvement, based on lived experience. (2) To identify design principles for the experience-based co-design (EBCD) of a mobile health self-management application.</p> <p>EBCD and human-centred design. Experience gathering and prioritisation (stages 1–3) with people with aphasia (<i>n</i> = 13), significant others (<i>n</i> = 8), and health professionals (<i>n</i> = 10) in interviews and focus groups. Experiences were analysed thematically to identify unmet needs and touchpoints. Priorities were established using the nominal group technique and mapped to technology design principles.</p> <p>Five touchpoints were identified: (1) The great divide; (2) Too many roadblocks; (3) Getting enough therapy that’s right for me; (4) A need to see progress; (5) Finding new ways to bridge the therapy gap. Priorities were synthesised into seven themes and mapped to five design principles: (1) connects the person with aphasia with their speech pathologist, significant others, and community; (2) links goals-therapy-outcomes; (3) shows progress visually; (4) supports information finding and sharing; and (5) is customisable and accessible.</p> <p>A customisable mHealth solution that facilitates connections and information finding, links goals, therapy, and outcomes, and tracks progress over time, may support aphasia self-management.</p> <p></p><p>People with aphasia, their families, and health professionals describe a great divide between hospital and community rehabilitation, marked by poor information flow, disrupted clinical handover, and long periods without therapy.</p><p>Access and adherence to community aphasia therapy depend on accessible information, personally meaningful therapy, visible progress, and connection with clinicians, peers, and family.</p><p>Rehabilitation professionals should introduce self-management skills, resources, and supports early in the care journey, before the person leaves hospital.</p><p>Rehabilitation professionals should make the links between a person’s goals, their therapy, and their outcomes explicit, and should share progress information in an accessible format.</p><p>Rehabilitation professionals should use technology to add to, rather than replace, ongoing contact with a speech pathologist, and should check that any technology they recommend is accessible to the person with aphasia.</p><p></p> <p>People with aphasia, their families, and health professionals describe a great divide between hospital and community rehabilitation, marked by poor information flow, disrupted clinical handover, and long periods without therapy.</p> <p>Access and adherence to community aphasia therapy depend on accessible information, personally meaningful therapy, visible progress, and connection with clinicians, peers, and family.</p> <p>Rehabilitation professionals should introduce self-management skills, resources, and supports early in the care journey, before the person leaves hospital.</p> <p>Rehabilitation professionals should make the links between a person’s goals, their therapy, and their outcomes explicit, and should share progress information in an accessible format.</p> <p>Rehabilitation professionals should use technology to add to, rather than replace, ongoing contact with a speech pathologist, and should check that any technology they recommend is accessible to the person with aphasia.</p> 2026-09-29T10:41:46Z Dataset Dataset 10.6084/m9.figshare.34022895.v1 https://figshare.com/articles/dataset/Priorities_and_design_principles_for_a_mobile_health_mHealth_application_to_support_self-management_of_post-stroke_aphasia_experience_gathering_and_prioritisation_within_an_experience-based_co-design_approach/34022895 CC BY 4.0