2026-10-11T20:22:52Z https://api.figshare.com/v2/oai

oai:figshare.com:article/34021620 2026-09-29T06:16:07Z category_24553 category_24499 category_25510 portal_21 item_type_8 month_year_09_2026

Understanding the Strengths and Limitations of Real-world Data for Quality Improvement and Clinical Research, in the Context of Endocrine Surgery Edwina Moore (25135716) Surgery Endocrinology Quality management thyroid cancer medullary thyroid cancer hereditary endocrine tumours harmonisation synoptic reporting clinical quality registry real-world data quality improvement in surgery Australia This PhD explored how patient data collected during routine healthcare can be used to improve treatment and research for endocrine tumours, including thyroid cancer. The research reviewed inherited endocrine tumour conditions and examined how clinical registries are used worldwide. It assessed whether patients with a rare thyroid cancer were receiving care that matched best-practice guidelines and identified areas for improvement. The thesis also tested a new surgical tool, developed a standardised thyroid surgery reporting template, and combined data from multiple hospitals to study rare pathologies more effectively. Overall, the work provides practical ways to improve patient care, research quality, and health system performance. 2026-09-29T06:16:07Z Text Thesis 10.26180/34021620.v1 https://figshare.com/articles/thesis/Understanding_the_Strengths_and_Limitations_of_Real-world_Data_for_Quality_Improvement_and_Clinical_Research_in_the_Context_of_Endocrine_Surgery/34021620 In Copyright Open Access after 2027-09-29