2026-10-11T21:10:57Z https://api.figshare.com/v2/oai

oai:figshare.com:article/33956682 2026-09-21T17:36:49Z category_7 category_8 category_21 category_734 category_106 category_132 portal_5 item_type_3 month_year_09_2026

<p>Opposite codes between adolescents and parents.</p> Sarah Covasso (25084641) Giulia Paoletti (468692) Mathie Lorrot (4797699) Sophie Dugué (25084644) Stéphanie Cardin (25084647) Costanza Puppo (16034927) Anaïs Chosidow (25084650) Alice Raffetin (14134781) Medicine Microbiology Biotechnology Biological Sciences not elsewhere classified Science Policy Infectious Diseases potentially fostering doubts interviewed 19 people dormant ,&# 8221 pediatric pain center also expressed fear ensuring diverse representations streamline care pathways xlink "> conducted lb among adolescents parents ’ perceptions care pathways xlink "> pediatric clinics social representations adolescents expressed three themes theoretical model structured interviews strengthening communication specialized centers reduce misinformation prolonged periods prevent misinformation personal experience medical uncertainty limited knowledge june 2023 including confusion improved knowledge identify themes general practitioners family history familial history dyadic approach could resurface coreq guidelines complicate diagnosis clinical manifestations children experience 809 codes &# 8220 <div> <p>Objective</p><p>The variability of Lyme borreliosis (LB) clinical manifestations can complicate diagnosis and lead to prolonged periods of medical uncertainty. There is limited knowledge about how children experience and perceive LB. This study aimed to examine the perceptions, social representations, and experiences of LB among adolescents and their parents.</p> <p>Methods</p><p>Conducted from March to June 2023, this multicenter qualitative study used grounded theory and a dyadic approach with semi-structured interviews to identify themes and develop a theoretical model, adhering to COREQ guidelines. Adolescents and their parents were recruited from pediatric clinics, infectious disease pediatric consultations, and a pediatric pain center, ensuring diverse representations (age, gender, region, and serology results).</p> <p>Results</p><p>We interviewed 19 people. A total of 809 codes were identified and organized into three themes: (1) A personal experience of LB influenced by family history; (2) Ambivalence toward medical discourse; (3) A need for improved knowledge about LB to prevent misinformation. Adolescents expressed a range of emotions, including confusion about the nature of LB, disinterest in the disease itself, and a lack of clarity about their care pathways. They also expressed fear that LB, perceived as “dormant,” could resurface in the future and harm them.</p> <p>Discussion</p><p>The study revealed contrasting experiences of LB between adolescents and their parents, with familial history and external influences shaping adolescents’ and parents’ perceptions, potentially fostering doubts, misunderstandings, and conflicts. Strengthening communication and the role of general practitioners in coordinating with specialized centers is crucial to streamline care pathways and reduce misinformation about LB. <b>Clinical trials registration number:</b> NCT05678478; <a href="https://clinicaltrials.gov/study/NCT05678478?cond=Lyme Borreliosis&term=adolescent&rank=2" target="_blank">https://clinicaltrials.gov/study/NCT05678478?cond=Lyme Borreliosis&term=adolescent&rank=2</a></p></div> 2026-09-21T17:36:37Z Dataset Dataset 10.1371/journal.pone.0357185.t003 https://figshare.com/articles/dataset/_p_Opposite_codes_between_adolescents_and_parents_p_/33956682 CC BY 4.0