2026-10-14T12:40:03Z https://api.figshare.com/v2/oai

oai:figshare.com:article/33844336 2026-09-16T11:40:40Z category_7 category_15 category_39 category_45 category_734 category_122 category_132 portal_87 item_type_3 month_year_09_2026

Care and services for children with cerebral visual impairment – barriers, facilitators and experiences: a mixed-methods systematic review Lauren R. Hepworth (6429635) Temitope Labinjo (24978364) Andrew Riley (14317468) Cathy Williams (354485) John Ravenscroft (4164871) Brinton Helliwell (8907149) Ffion Curtis (3564833) Michelle Maden (4725354) Charlotte Croft (20070453) Vijay S. Gc (8544255) Andrew Hill (95939) Ruaraidh Hill (7572506) Shelley Robinson (24978367) Catrin Tudur Smith (8894699) Fiona J. Rowe (6429632) Medicine Neuroscience Ecology Sociology Biological Sciences not elsewhere classified Mental Health Infectious Diseases Cerebral visual impairment services quality of life experience barriers facilitators <p>To examine the experiences of patients and/or caregivers of care/services for children with cerebral visual impairment (CVI), as well as the barriers and facilitators to access and delivery of care/services for children with CVI.</p> <p>A systematic review of mixed-methods studies reporting patient and/or caregiver experiences of services, impact on quality of life, and barriers/facilitators to care and services, for children with CVI. Database searches (to July 2026), a call for evidence and quality appraisal were conducted. A thematic synthesis approach was utilised, and descriptive themes were mapped onto the Capability, Opportunity and Motivation (COM-B) model and Theoretical Domains Framework.</p> <p>Included studies (<i>n</i> = 23) spanned education, healthcare and home settings and involved children, caregivers, teachers, educational specialists and healthcare professionals (<i>n</i> > 1,430).</p> <p>Key barriers and facilitators shaping the experience of families/professionals dealing with CVI were found, including fragmented services hindering coordinated care, however, collaboration across settings created supportive environments.</p> <p>This review demonstrates that challenges in CVI care and service provision are best understood as interacting behaviours and systemic determinants, rather than isolated service failures. A shift in approach from episodic, diagnosis-led care to more co-ordinated, functionally orientated models of care spanning education, healthcare and home contexts are required.</p> <p></p><p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p><p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p><p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p><p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p><p></p> <p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p> <p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p> <p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p> <p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p> 2026-09-16T11:40:40Z Dataset Dataset 10.6084/m9.figshare.33844336.v1 https://figshare.com/articles/dataset/Care_and_services_for_children_with_cerebral_visual_impairment_barriers_facilitators_and_experiences_a_mixed-methods_systematic_review/33844336 CC BY 4.0