2026-10-12T18:29:38Z
https://api.figshare.com/v2/oai
oai:figshare.com:article/33810904
2026-09-15T17:34:37Z
category_4
category_12
category_21
category_61
category_64
category_106
category_132
portal_5
item_type_3
month_year_09_2026
<p>Anonymised Quantitative Data.</p>
Ikumi Okamoto (18350092)
Alice Jin (24948298)
Simon Noah Etkind (6079571)
Donna Wakefield (14069021)
Tracey McConnell (3542543)
Anthony Byrne (503224)
Yesha Viren Dharamshi (24948301)
Fliss Murtagh (5156321)
Anne Finucane (3454808)
Biochemistry
Cell Biology
Biotechnology
Developmental Biology
Cancer
Science Policy
Infectious Diseases
next five years
methods online survey
investigated researcher perspectives
advanced progressive illness
across career stages
90 %) wished
vital research field
xlink "> overall
xlink "> globally
xlink "> despite
79 %), 67
life care research
256 people involved
protected research time
grow research activity
build research capacity
individuals conducting palliative
life care
xlink ">
research rigour
care setting
39 %),
conducting palliative
working environment
united kingdom
quantitative data
qualitative data
permanent contract
participants identified
knowledge exchange
inform policy
increased visibility
increased opportunities
impact activities
greater visibility
ended questions
common barriers
committed workforce
collaborative culture
clinical practice
clinical academics
analysed using
analysed descriptively
academic institution
35 ).
33 %).
<div>
<p>Background</p><p>Globally the number of people with an advanced progressive illness is increasing. Research is essential to inform policy, services and clinical practice to meet their needs. We investigated researcher perspectives on conducting palliative and end-of-life care research in the United Kingdom and what is needed to grow this field.</p>
<p>Methods</p><p>We conducted a mixed-methods online survey of individuals conducting palliative and end-of-life care research in an academic institution or any care setting. Quantitative data were analysed descriptively, while qualitative data from open-ended questions were analysed using a Framework Method.</p>
<p>Results</p><p>Overall, 256 people involved in palliative and end-of-life care research responded (80% female, 85% white, 83% aged over 35). Most worked at a university (79%), 67% worked full-time, 47% had a permanent contract and 9% were clinical academics. Many reported positive aspects of their working environment, such as a collaborative culture and research rigour. Nearly all (90%) wished to continue palliative and end-of-life care research during the next five years, however only 69% believed this was likely. Most common barriers were lack of funding (56%), heavy workload (42%), job insecurity (39%), and limited career progression opportunities (33%). To sustain and grow research activity, participants identified a need for: (i) Greater visibility of palliative and end-of-life care as a vital research field; (ii) Increased funding to support those undertaking palliative and end-of-life care research, across career stages and disciplines; (iii) Increased opportunities for collaboration and networking; (iv) Protected research time, and (v) Support to build a more diverse research community.</p>
<p>Conclusions</p><p>Despite a committed workforce, palliative and end-of-life care research lacks visibility and funding. Increased visibility through knowledge exchange and impact activities, alongside more targeted research funding opportunities, are essential to build research capacity for the future.</p></div>
2026-09-15T17:34:29Z
Dataset
Dataset
10.1371/journal.pone.0357024.s006
https://figshare.com/articles/dataset/_p_Anonymised_Quantitative_Data_p_/33810904
CC BY 4.0