2026-10-13T21:11:23Z https://api.figshare.com/v2/oai

oai:figshare.com:article/33772237 2026-09-15T05:44:25Z category_173 portal_316 item_type_3 month_year_09_2026

Table 1_Managing stigma and reconstructing caregiver identity: a qualitative descriptive study of family caregivers of children with cerebral palsy in China.docx Mei Yu (48172) Cuiping Xu (8597124) Chunmin Ji (24912958) Zhen Zhang (86004) Meiying Guo (8159430) Applied Psychology caregiver identity cerebral palsy family caregivers qualitative research stigma management Purpose<p>Family caregivers of children with cerebral palsy may encounter stigma alongside substantial caregiving demands. However, less is known about how they experience and manage stigma in everyday social encounters and reconstruct a valued caregiver identity. This study aimed to explore these experiences among family caregivers of children with cerebral palsy in China.</p>Methods<p>A qualitative descriptive design was used. Twenty family caregivers were recruited from a tertiary hospital in China using purposive sampling. Data were collected through semi-structured, one-to-one interviews and analysed using inductive content analysis.</p>Results<p>Twenty family caregivers participated in the study. Analysis generated four themes: (1) becoming a caregiver: disrupted expectations and expanded family roles; (2) living under the gaze: stigma and social judgment in public and family encounters; (3) managing stigma in everyday interactions: concealment, disclosure, and resistance; and (4) rebuilding a valued caregiver identity through responsibility, support, and meaning-making. Caregivers experienced public/enacted stigma, stigma by association, anticipated stigma and, in some accounts, internalized affiliate stigma. They used context-dependent strategies to manage stigma, while continued caregiving, children’s small gains, and supportive relationships helped sustain a valued caregiver identity despite uncertainty about the future.</p>Conclusion<p>Stigma-related experiences extended beyond internalized affiliate stigma and were embedded in everyday social relationships. Family-centered, stigma-sensitive care should address stigma-related challenges across family, community, and service contexts while strengthening support that affirms caregivers’ value and identity.</p> 2026-09-15T05:44:25Z Dataset Dataset 10.3389/fpsyg.2026.1933578.s001 https://figshare.com/articles/dataset/Table_1_Managing_stigma_and_reconstructing_caregiver_identity_a_qualitative_descriptive_study_of_family_caregivers_of_children_with_cerebral_palsy_in_China_docx/33772237 CC BY 4.0