2026-06-15T06:34:18Z https://api.figshare.com/v2/oai
oai:figshare.com:article/19846924 2022-12-15T10:12:37Z category_24739 portal_549 item_type_3 month_year_12_2022
10.5522/04/19846924.v1 https://figshare.com/articles/dataset/Health-related_quality_of_life_in_adults_with_classical_infratentorial_superficial_siderosis/19846924 https://ndownloader.figshare.com/files/38549915 Kharytaniuk, Natallia Natallia Kharytaniuk Mazaheri, Amir Ala Amir Ala Mazaheri Pavlou, Menelaos Menelaos Pavlou Werring, David David Werring Bamiou, Doris Doris Bamiou <![CDATA[Health-related quality of life in adults with classical infratentorial superficial siderosis]]> Neurology and neuromuscular diseases Superficial siderosis infratentorial central nervous system quality of life Neurology and Neuromuscular Diseases 2022-12-15 2022-12-15 Dataset 2022 University College London Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on  health-related quality of life: HUI3 and EQ5D. The study findings are reported in:  

Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis
A Cross-sectional Study
Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou
 Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115

Available from: https://n.neurology.org/content/99/19/e2201


To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.
 

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